Get Involved
At Move for kEDS, we believe that every action—big or small—brings us closer to a future where treatments and a cure are possible. Because kEDS is so rare, your involvement truly makes a difference. Together, we can create awareness, fuel research, and bring hope to families around the world.
Join Our Community
Connect with other families navigating kEDS. Together, we share strength, stories, and support so no one feels alone on this journey.
Raise Awareness
Share our mission with friends, family, and your community. Awareness inspires action, and action drives discovery.
Partner with Us
If you’re a researcher, clinician, or organization, we invite you to collaborate. Together, we can uncover new knowledge and accelerate progress toward treatments.