From rare to remarkable: moving toward a cure for kEDS
Our mission is to shine a light on kEDS by sparking interest in the scientific and medical community, encouraging groundbreaking research, and exploring innovative approaches such as drug repurposing.
We strive to unite families, researchers, and industry partners around a common goal: to transform the future of kEDS from uncertainty into possibility.
Current Research
Unexpected PLOD1 twist - Cure Roadmap with Perlara
Perlara uncovered a surprising result while studying PLOD1-kEDS fibroblasts. What began as a setback turned into a new research path: creating a collagen secretion assay that opens doors for future drug discovery. Each twist brings us closer to understanding and treating PLOD1-kEDS.
Drug Repurposing Screen by Unravel Biosciences
Unravel’s dedicated team brings effective drugs to patients based on technology developed at the Wyss Institute for Biologically Inspired Engineering at Harvard University. Their deep experience cuts across disciplines, including computational drug discovery, innovative animal models, automated drug screens, and entrepreneurship, and forms the keystone to building a new paradigm for accelerating drug development at lower cost and with lower risk.
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